Sunday, December 8, 2013
Monday, November 25, 2013
Tuesday, October 22, 2013
Tuesday, September 17, 2013
Friday, September 13, 2013
Tuesday, September 10, 2013
Sunday, August 11, 2013
Wednesday, August 7, 2013
We spent a long day at the Huntsman Cancer Institute where Paul Tanner's medical artistry is practiced. Katie didn't mind the tediousness of all the aligning, adjusting, and talking to the news crew. These wax ears are just preliminary, but even so, it was an emotional event to see her with ears on the side of her face for the first time ever! Katie was all smiles, especially as she hung her first set of earrings to see how they looked. Friday will be another long day to finalize everything.
This blog episode is all in pictures. I hope you can follow the process.
It's pretty fascinating! Katie is EXTREMELY excited about these ears! The surgery to expose the new implants from under the skin went very well yesterday. She has only had a small headache today. KSL TV will be airing a special segment on Katie getting her ears this weekend. We'll post the time when we find out.
Sunday, July 7, 2013
P.S. KT has started her own blog to express what it's like to live with TCS (Treacher Collins Syndrome). http://strollimysoles.blogspot.com/
Wednesday, July 3, 2013
The bandages will be changed on the 3rd day by Pam, then every day for the next 4 days. The problem we didn't anticipate is that she cannot get her hearing aid on with the bandages as they are today, so she'll be deaf for these few days, and she does NOT like that! She wants to be in on everything, and going without her aid is a worse sentence than anything else she can think of.
This morning, at about 9:00 a.m., she said she felt a little bit better. So maybe we'll be able to enjoy the 4th of July a bit. She was so excited about this surgery, and none of us expected it to be quite as rough as it has been for the last 24 hours. But now, we're on the upswing, and once she can get her hearing aid back on, she'll be a happier camper! Thanks for your prayers and love!
Tuesday, July 2, 2013
KT is in surgery right now to have 3 titanium posts implanted on each side of her head to hold the new prosthetic ears she gets in August. She is so excited! Never before has she gone into ANY surgery smiling like she did this morning.
She will have her ear nubs removed as part of this process, so we took one last photo to remember them by. Lastly, she will get a new post on the left side to secure a new bone-anchored hearing aid (BAHA) to, so she'll have bilateral hearing after all these years.
It should be a 3 hour process.
Monday, May 20, 2013
Her severe facial pain issues continue, so we're hopeful that Dr. Wells will be able to do a test nerve block in her face while she's in the hospital overnight. We're also trying to schedule craniofacial surgery for July in North Carolina to build her jaw joints, so that her lower jaw can finally be rotated sufficiently to bring her teeth together and create a chewing surface, which was nearly completely lost during the recent molar extraction (which was supposed to be the root of her face pain, and didn't do a lick of good.)
We're really struggling with knowing where to go and what to do to help this little gal. She successfully made it through her Junior year of high school, but with much difficulty because of the pain. Please, Lord, guide us! She wants to go on to college and become a veterinarian, and needs a more stable face to be able to make those goals.
Thanks again for your prayers.
- Glenn & Pam