KT will miss her new little dog, Oreo, as she heads back to Cincinnati for two months. Bon Voyage, my brave little trooper girl! Soon this long ordeal will be but a fading memory. I love you!
Tuesday, August 30, 2011
Unfortunately, the facial surgeon here in St George was unable/unwilling to do any adjustment on KT's RED device, so we are forced to get her back to Ohio ASAP. Because of the holiday weekend, it won't do us any good to get there sooner than Monday for a Tuesday procedure, so Pam, KT and our #4 daughter, Ali, will start East on Friday. As you can imagine, KT is pretty sad about leaving - she has so enjoyed being home with her friends. But, we've come too far to stop now, or to let this setback undo the tremendous progress that's been made.
Monday, August 29, 2011
KT's "halo" (RED device) is falling on the right side. We tried to reposition and tighten it last night, with her screaming bloody murder the whole time, but it's only a temporary fix at best. We need to get her back to Ohio real soon, where she and Pam will stay until it's all removed the end of October.
At least we were able to get her schooling all arranged while she was here. She doesn't want to go back, but there are just too many complications happening (very loose teeth is another) that we really need to be there. I, of course, can't go because of work, so daughter Ali has volunteered to take my place this time. Her little newborn Wade will keep KT's attention - she just LOVES babies!
KT sure enjoyed getting to see all her friends at school and church this week. Everyone was so good and loving with her. Thanks to you all for welcoming her with such open arms & hearts!
Sunday, August 21, 2011
Friday, August 19, 2011
Katie has shown such progress in the last few days. She has begun to use a straw well and will drink an entire juice glass size of milk in one sitting. Sometimes she drinks even more than that. She has also been motivated to try to eat. Her mouth must feel enough better to allow herself to experiment with tasting food. You saw the evidence with the photo of the spaghetti plate I sent yesterday or the day before. She probably ate approximately, ¼ cup to ½ cup of spaghetti. One morning she asked me to cook her an egg. She ate the “white” because she said it “slid down better”. Yesterday when she got ready, she asked if she could please go to the kitchen and drink some milk. I said “yes” and she trotted down there on her own. Now this is a big change. She has stuck to me like glue since her Dad left.
Monday, August 15, 2011
So, we won't be able to start home until Friday, a day later than planned. I hope we can still get home by Sunday evening so I don't have to miss any more work. We'll still return in mid-September, around the 14th, but not for the removal of the hardware, as we had supposed. Instead, he'll use that date to wire her mouth shut so everything will be solidly in place for a full month before the headgear is removed.
She'll wear the headgear all the way until October 26th, a full 6 weeks longer than originally planned! That's when he'll add the cheekbones, and do some chin and eye work.
Bottom line: this effort goes on for much longer than we knew. Dr. G has to modify the plan each step of the way as he determines what is needed. Pam says KT's profile is really cute now, so it's doing the job. This new schedule will really impact her schooling, so we're trying to get some online classes going. School started today here, so she's already late getting going.
Sunday, August 14, 2011
Pam was worried about driving downtown, but she made it, with the help of Aunt Rache's navigational abilities!
They'll all be home soon....
Thursday's the day I fly back out to Ohio to pick them up and drive them home. That is, as long as Dr G is happy with the progress tomorrow during the check-up. She'll come home for a month with the headgear still in place. I got her registered to take two online classes - math and language arts. She'll continue with the other classes she's registered for in high school, but will do it all from home for a month or more. Tomorrow, we'll set the date to go back and have the headgear removed.
Thanks for all your prayers! All the pain and misery is paying off, and it's all looking up. We know your prayers had a strong impact on this outcome, so keep 'em going!
Thursday, August 11, 2011
Depending on her Dr appointment next Monday, we hope to start driving home to Utah on Thursday, 18 August. G'ma & G'pa head for home today, and they'll be sorely missed - their spiritual support has meant SO MUCH! Aunt Rache is staying to help finish out this last week and will drive home with us at the end of next week. We're grateful to her, too, for helping us out since I (Dad) had to get back to work. Today is the first day of school for teachers, so things are pretty hectic here. Plus, I've had to move my entire office because our JROTC program has grown so big, we outgrew the old place!
Keep your prayers going. Pam is still pulling a big load back East taking care of KT. I feel bad that I had to leave them alone back there.
We are very pleased with the way the airway has opened. KT has started to eat some soft solids, and she thinks they taste WONDERFUL! She says applesauce if very out, and root beer tastes YUCKY. But it's nice to see her start to enjoy foods. Her olfactory senses have also increased tremendously, so she's starting to complain about smells she's never noticed before. We still have another month, at least, until she gets her "halo" removed.
Monday, August 8, 2011
Katie is in no pain, to speak of. She's stronger, happier, more active. And, LOOK at the progress being made in her upper jaw!!! I am just amazed as we enter the final stretch of the airway opening effort. It hasn't been fun, but the desired results are becoming more and more obvious. She can close her mouth, her lips, and you can begin to see how her teeth will eventually be in a place that will allow her to chew normally. We are so happy, we can hardly contain it!
This week is exciting for her, as she was given free tickets to go to a free Cincinnatti Reds baseball game Thursday afternoon, and then to a professional tennis tournament Saturday, where she'll be allowed to get autographs of the athletes! Couldn't be better.
Thanks again to G'ma, G'pa and Aunt Rache for being out there to help out Pam and Katie after I had to return home to work. We'll be back together on the 18th for the drive home; however, her "halo" headgear will remain in place for a full month after our return. When we go back in mid-September, we'll get the hardware removed, and some cheek bones and chin bone implanted.
Monday, August 1, 2011
I fly home today, as I run a JROTC camp this week. But thankfully, Aunt Rache and G'ma & G'pa are here to help Pam through the last two weeks before we ALL come back to lovely St. George! It will be so nice to be home, but it is hard to leave Pam and KT here before it's all completely over. They'll be fine, though.
Thanks to you all for your love, support and prayers. They have really been put to good use, I'll tell ya! And don't stop now...