Two weeks ago, a new Doctor named Jason Hunt at the Huntsman Cancer Institute, called. He had been consulting with the University of Utah Neurosurgeon, Dr. House, and he said he had an idea he'd like to present to us. So we went up there, and he did, indeed have a new approach that he called "nerve decompression." Earlier this Fall, Doctors thought they'd found a bone spur pressing against craniofacial nerve #5, the same nerve involved with tic dolore, or trigeminal neuralgia. However, because Katie's pain is a throbbing pain rather than sharp, electrical pains, they did not think it consistent with trigeminal neuralgia. And, because of the placement of the bone spur, removing it was considered too risky to life. So they wanted to find options that were less dangerous.
So we talked about rhizotomy, which is to basically kill the affected craniofacial nerve #5, by injecting an alcohol substance. That is hard to do, because of her unique anatomy, but feasible. It would leave her cheek area numb the rest of her life, but would not affect any muscle movements, as that nerve isn't a motor control nerve.
However, his discussion with us was very informative. He mentioned that doing his proposed procedure would have the risk of damaging tooth #2, which is Katie's only chewing surface (1st molar on the top right rear). Pam immediately had the thought: maybe that tooth is the source of the pain, so why not remove it first, and see if that relieves the pain? I mean, if the tooth is going to be lost anyway because of the nerve decompression procedure, let's remove the tooth and see what that does. It made really good sense to me! And about an hour later, it hit me like a brick wall that Pam had been inspired. Here's why:
- As her only chewing surface, that area takes a LOT of abuse. It could well be the source of the pain -
- We had never realized that the root of that tooth was right there where the pain is.
- There has been a strange discharge on-and-off that comes from behind that very tooth. It is the strangest thing - when it comes, it is quite a bit of stringy, nasty, fluid that tastes horrible. However, xrays don't reveal any source of that fluid.
So, I fasted for two Sundays in a row. I told the Lord that we just had to find a solution because Katie could not go on like this! She spent a night and a day in the hospital again the day after my 2nd fast, and things were coming to a head. But I did receive a confirmation that removing the tooth was the right first step. It has been a year since we've tried anything, though believe me, there have been a lot of discussions, evaluations, and attempts to find an answer.
Based on that answer, we set out to get the tooth extracted. Dr. Brett Christensen did another xray and clinical exam. He found no infection in the tooth, but said that "traumatic occlusion" could well be the source of the pain. He confirmed that if it was his daughter, this would be his plan too. I also consulted with the orthordontist, Dr. Prince, who also confirmed that he would go the same route if it were his daughter. (I've found that asking Doctors what they would do if it were there child is a very effective way to get them to think things through from the patient's perspective, rather than from their medical training alone.) Pam and I still had a lingering concern about what Dr. Gordon had said, though, about the lack of bone in that right jawbone.
So, I kept pushing, and yesterday, we were able to get a hold of Dr. Nick Egbert, a prosthodontist - the guy who is planning to fit Katie with dentures when the time comes. I asked him if pulling that tooth would ruin his plan for Katie, and surprisingly, he said that pulling tooth #2 was his very first step in the plan for Katie anyway, and that we should definitely pull it! He said the roots of that tooth are so shallow that it would have no negative effect on her jaw - no destabilization, which was my worry. That was GREAT news! He also added (through his assistant) that it was COMMON to have such bad pain through traumatic occlusion when there is only one chewing spot. So, that clinched it.
The extraction is set for Friday morning, two days from now. Originally, it was scheduled for today, but Dr. Scott Bulloch had to change his schedule around. We are SO HOPEFUL that this will alleviate Katie's pain! We'll let you know how it goes. Please continue to pray for her.
If it does not, we will continue quickly with the other steps outlined above, one by one. She has to get relief. She got a priesthood blessing last week that was quite powerful, and in it she was promised, "The hour of your deliverance is nigh." And SO IT IS!